My name is Lyndon, I am 21 years old and I have NF. I was diagnosed at the age of 3 with type 1 NF. There is no prior history in my family of this, so in turn I am the only one. I have only had one surgery and that was to remove a tumor near my eye. I will probably be going for another surgery within the next year.
NF hasn’t really affected me much in life; other than being asked at work if I have ever been in a fight. I try to explain it is a tumor and always try to let them know what NF really is. I am currently completing my Cost Accounting Class in hopes of one day working in Accounting Office. I also completed a Website Design Certificate and have a Website Portfolio ldemers.com
In my spare time, I like playing Xbox 360(NHL 2009), and playing some street hockey. I also like going to movies and watching T.V. I also like watching the Edmonton Oilers.
Before 2007, I had never met anyone else with NF; at times it was difficult being the only one with the disorder. In 2007 I had the pleasure of meeting the MBNF Support Group and was invited to their second meeting. I was able to meet a lot of nice families with NF and also Stephanie. For me, I feel fortunate knowing there are more people out there that have NF and I now know that this support will always be there. Since becoming part of MBNF, I have organized two “Surprise charity BBQ’s” and shoveled plenty of snow to help raise money and awareness for NF.
I just want to put big thanks out to the members of the MBNF Support Group, to my family and all my friends for the support I receive.