Subject: News from Manitoba Neurofibromatosis Support Group Corp.
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Manitoba Neurofibromatosis Support Group

Spring is almost here!  Time for an up-date. March 2011
In This Issue
MRI Campaign
Run With Me...4 NF
MBNF Picnic
Mark Your Calendar

 

MRI Campaign Sponsors and Donors

MB Hydro
 Christmas Traditions 

 

Jeans Day for Charities
Peggy Porter
Ed Hamm

 

Dari Isle Drive Inn

 

 Erickson Hospital
 
Lions Club
Tyler Lalonde enjoyed NF Camp!
 
Tyler 

 
Tyler is a 14 year old member from Brandon. He was able to attend the the CTF NF Camp in Utah thanks to the Goldeye's Foundation generous grant  to MBNF!
MBNF Thank You's for Grants received in 2010!

 

NF Canada
nf canada logo 
Goldeyes Field of Dreams
 field of dreams
We have received another $2000 grant from the Goldeyes for the 2011 NF Camp! Thank You.
Please contact Tracy if your child would be interested in attending. 

 

 
Quick Links...

 

Our website

 

Register for
Run With Me..4NF online
www.mbnf.ca/register.php 

 

iTV Brandon does newsclip about NF and our Run 4 NF

 

Visit our NF National

 

 

 

MBNF would like to extend a warm welcome to our newest  families:

The Howes and the Depratto family.

 


jacket 

MBNF Merchandise

 

Jackets-$100

Golf shirts-$40

T-shirts-$25

 

All items have our MBNF logo.

 

 

 


 

 Follow some fellow NF'ers

 

Kristi Hopkins

Thriving With NF

 

Reggie Bibbs

Just Ask

 

MBNF is on Facebook!!!

MBNF

 

 

 

 

 

 


Hello Friends, 

 

Time is flying by and it is once again time to update everyone on some of the achievements and events taking place in our Support Group. 
We continue to work on our mission to make NF a common name in the health community, schooling system and the general public. 
Without staff this work can be slow, but our baby steps are still moving us forward! I believe that we accomplish all that we do because of the dedicated supporters we have within our group! Thanks for your continued time and willingness to help!
MRI Campaign
MRI
Our MRI Goggle Campaign is still in the works.  We increased awareness of our group and campaign by asking participating schools and businesses to consider our group for their Jeans Day for Charity collections.  We had many schools and businesses in the Westman Region send money. This effort raised $1000.

We also had a Drive into the Fifty's Day at the Minnedosa Dari Isle Drive Inn.  We received $5.oo from each Special sold. (Burger, fries and milkshake for $8.50). Troy, Tracy and Levi dressed in 50's fashion and helped with the operations. This event rose $750.

 

Cindy Genyk and Nancy Anderson have sent out grant requests to larger companies, which also helps raise the awareness of our group and NF.
The Lions Club has recently taken an interest in our campaign. More details will be sent out when this has been finalized.
An online Pepsi Grant opportunity for $25,000 has been initiated. From March 1st to April 30th we encourage you to vote daily. Please click on the link below to start voting now. You may also view the Campaign video to get a better understanding of how these Goggles work.

NEW MRI Video Campaign.wmv
NEW MRI Video Campaign.wmv
run 2010 (3)Run With Me...4 NF
Our sixth annual run for Neurofibromatosis will take place on June 11th. Both the 5k and 10k runs start and finish at the Minnedosa Beach Pavilion.

 

This run continues to be our biggest fundraising event and helps us maintain our core operating needs. This past year's Run 4 NF brought in over $6000!
Next year we will be adding an online payment option for runner's to collect pledges.

 

Thanks to Charlie and all our members who make the effort to travel, participate, collect funds and /or volunteer.  You help make this event a continued success.

Reminding everybody to sign up early and get pledging for our 6th annual run!
MBNF Picnic
Our picnic was once again well-attended and fantastic thanks to Stephanie! This is our best get-together to visit with our friends within our group. It is a time to share good food, NF stories, talk about doctors and appointments or just shoot the breeze.  The picnic took place on August 21st at Assiniboine Park.
picnic 2010


Looking forward to seeing everyone at our 2011 gathering!

 

Mark your Calendar
  • Our next MBNF meeting will be held In Brandon On April 30th at the Lakeview Inn and Suites from 2-4pm.
    The focus of this meeting will be about the LD's associated with NF. Guests from student services within the school system will be in attendance for the presentation.
  • The 6th Annual Run with me...4 NF will take place June 11th, 2011 at 10:00 AM in Minnedosa.
     
  • Trash the Dress will be held on September 18th in Winnipeg. For $150 towards our campaign, you will get to feel like a model for a day and have fantastic pictures to prove it. Thank you to Carrie for donating your time and skills.
    http://carriekoskyphotography.ca 
     
  • From March 1st to April 30th we encourage you to vote daily for our Pepsi grant.  Pepsi Grant (25K in the Health category).
  • Christmas Traditions will be held at the end of November or early December, the date will be sent out closer to the event.

 

 

Loaning library is available at every meeting.

Books:

  NF Buddies
  Who Says It Has To Be Fair
  Youth Guide To Understanding NF
  Facing NF-A Guide For Teens
  Attention Deficit Disorder
  Why Do I Feel This Way
  NF Handbook For Parents, Families and Health Care Professionals
  Thirty Cats

Videos:

  Kids to Kids
  Life with NF Symposium 2007
  Life with NF Symposium 2008
  Disk from NF Symposium 2010

I look forward to seeing you all again at the annual meeting and planning for new and exciting advancements with our group and the awareness of NF!

 

Sincerely with blessings,

 

Tracy Gregorash

 

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Manitoba Neurofibromatosis Support Group Corp. | Box 2025 | Minnedosa | Manitoba | R0J 1E0 | Canada